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It’s 11am in a hotel room in Paris. The French actor Mathieu Amalric, his face stubbly and his dark eyes gleaming, has been in meetings all morning, talking about his remarkable role in a new film, The Diving Bell and the Butterfly. Now he wants to escape. “Let’s go down to the bar,” he suggests.
Dressed from head to toe in black, he slinks from the room with the fluid grace of a panther. It is difficult to imagine this coiled-up bundle of energy being still for a minute, let alone paralysed, as he is in the film. “I joked to my friends before we began shooting that all I would have to do was lie in bed or sit in a wheelchair,” says the actor, now hunched over a glass of white wine. Even so, it was the most challenging thing he has ever had to do. “At the end of each day’s filming, I was a wreck. Not moving for hours at a time, it is totally exhausting.”
Imagine, he says, being unable to make any sound, unable to attract anyone’s attention, unable to brush a fly from your nose, scratch an itch or move anything other than one eye: this was the terrible fate that befell Jean-Dominique Bauby, the then editor of French Elle magazine, who was paralysed after a stroke in 1995, at the age of 43. He “wrote” a book about his ordeal by blinking one eye at letters of the alphabet as they were recited to him. The film, directed by Julian Schnabel, is based on that book and was shot at the hospital near Calais in which Bauby died a few days after the publication of his memoir in 1997.
Unusually for a work featuring a chronic illness, the film has been a smash hit, winning four Oscar nominations, a Palme d’Or at Cannes and a Golden Globe for best foreign film, and getting rave reviews in America, where The New Yorker judged it a “feast of moviemaking” that confirmed Schnabel’s reputation as the most inventive film-maker of the day. If only they still said similar things about his painting. The diving bell of the title refers to a recurrent image of Bauby helplessly trapped inside an ancient diving suit, a metaphor for what the doctors call “locked-in syndrome”: his body may be useless, but his mind has been unaffected by the stroke, leaving him free to go on living in his imagination.
Amalric wanted to know what that felt like, so, whenever he was on the set, the only movement he allowed himself was to blink with his left eye. “If I had an itch somewhere, I wouldn’t scratch it,” he says. “If I wanted to go to the loo, I wouldn’t say it. Or if I was thirsty. Even to the crew, I wouldn’t say anything except yes or no, and only by blinking. Of course it was false. Of course, I am an actor. I knew I could move if I wanted to. But I tried to be paralysed as much as possible.”
He even avoided chatting with the other actors between takes. “If I had said ‘Hey, let’s go and drink a coffee’, or ‘How are your kids?’, or ‘What are you doing afterwards?’, it wouldn’t have helped them to be in front of the silence that was Bauby, to be in front of nothing, as it were. So I stayed like that. I had this eye with a sticking plaster on it all the time, and an eye lens with some blood on it. I needed the pain to concentrate on solitude.” He believes he eventually came to understand what Bauby had gone through. “There’s something very strange that happens,” he says, recalling the experience. “People forget you can see them. So you can look at them. Like a peeping Tom. You just have fun watching the crew, watching the girls. You look at their legs, at their ass – they don’t even know you’re looking. You can look at everything. You can feel everything. Your sensibility is extreme.”
At the start of the film, the audience sees only what Bauby sees – doctors, nurses, visitors, the strangely beautiful hospital room with a curtain flapping in the breeze. We hear his thoughts on the soundtrack. At first he is angry and bitter: an orderly turns off the television on which Bauby is watching a football match, but there is nothing he can do about it other than to internally scream “ Merde!”.
With grim humour, he adapts to a life of the mind, and the result is at once poignant and funny: we go on a speeded-up journey through Bauby’s imagination, watching him skiing and surfing as a boy, and reliving memories of kissing his girlfriend in the surf and driving in a convertible with her, when her hair is seen from behind, blowing in the wind. One image that haunts him is of chunks of ice crashing off a glacier into the sea.
The actor, too, was living in his imagination as he lay there, trying to be Bauby. Sometimes he would think about his previous film, an erotic adventure called The Story of Richard O, whose protagonist goes on a sexual safari in Paris one summer. “I used that when I was lying in that hospital bed, not moving,” says Amalric, who has now moved onto more solid refreshment, a plate of beef carpaccio. “I was thinking about all those women. I just tried to remember their smell. I tried to remember those special nights I had spent with them. And I could.”
No wonder Amalric, the son of two journalists from the newspaper Le Monde, seems to regard acting more as fun than as a proper job: he got onto the screen “by accident”, he says, and despite, at 42, being one of France’s most respected practitioners of the craft, he still regards it as a distraction from his real career, that of film-maker. He has directed three films, including Le Stade de Wimbledon, a comedy, in which he cast Jeanne Balibar, his former wife.
He was clearly impressed by Schnabel’s directorial approach: nothing as banal as a script was allowed to confine the imagination of this bearded, cinematic adventurer, who is famous for painting on broken ceramic plates. Instead, the actors were encouraged to improvise most of their lines. “Julian has this special way of shooting. He tries to break professional habits. The camera can shoot at any moment. Never try to be organised. He thinks that if it’s organised, it is close to death. We spent nights with him. He never sleeps. He has so much energy. He is exhausting. He doesn’t ask you only to be an actor. He asks you something else. That’s why I could invent.”
Going out to dinner with Schnabel, a former short-order cook in New York, was just as much of an adventure. “He’s a monster,” the actor enthuses. “You have to see him eating, it’s amazing. He takes everything on the menu. They have to bring another table and another table to put all the dishes on it. It’s always like that with Julian. Everything is huge, not just his paintings.”
One of the most memorable scenes was shot at Le Duc, the favourite fish restaurant of the former French president François Mitterrand – and of Schnabel. In the film, Bauby has just had a feeding peg fitted in his stomach, and knows that his eating days are done. He imagines the taste of oysters and a spectacular feast in Le Duc with his attractive young speech therapist. “I didn’t eat for two days,” Amalric says. “It is an incredible restaurant – salmon, bass, octopus, everything you want. We ate and we ate and we ate.” They feed each other oysters and gaze passionately into each other’s eyes while licking their fingers. Then Bauby leans across the table and starts hungrily kissing the girl. It was not scripted. “I was completely drunk,” Amalric explains. “She was too. I was so drunk that I just started kissing her.”
Acting, he says, was like being a “forger” or committing a bank robbery. “I need that sensation of getting away with something because it’s exciting.” It was also a form of “vengeance on adolescence, when you have spots, when you’re too shy to invite a girl to dance. That’s why people are actors. I was full of complexes when I was young. I was in my bubble. I’d have never thought of becoming an actor”.
It’s not that Amalric wants to give up directing, but he finds it difficult to get on with his next behind-the-camera project while being offered so many enticing roles. “Each time, I say, ‘Okay, this one is the last one, then I do my film’ – but each time I get an irresistible offer.”
The latest was an offer to be the next Bond villain, which he immediately accepted. It is not because he wants to be famous. Far from it. “Spending two days in a hotel doing interviews is not my goal. No, I could be with my kids. I could be making love. That’s real life. Surprising my girlfriend, going to Lisbon for two days, you know, that’s life. But I couldn’t resist it. My two boys, who are 8 and 10 – I can’t tell them one day that I refused to be the villain in a Bond movie.” Besides, he has always enjoyed the films, and confesses that, since the age of 18, he has used 0007 as a Pin number. He reels off a list of actors who have been Bond villains before: “Just the best actors in the world.”
Before accepting the role, he asked the veteran actor Michael Lonsdale, who played the villainous Sir Hugo Drax in Moonraker, how it had affected his career. “It didn’t change his life,” Amalric says. He adds that the film is “very dark” and the role extremely physical – anything might seem physical after playing Bauby – because of a big fight with Bond at the end. “I’ll have to be in shape for it,” he says.
Then, perhaps, he might be able to get back to directing. At least, until another irresistible role comes along.
The Diving Bell and the Butterfly opens on February 8

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I really hope it wins the Oscar so more people will be touched by the beauty of it. It cannot nor probably not will not be categorised or summarised too easily as one's own inner voice mixes with Bauby's for a very personal experience. A great film.
Julie, The World,