Adam Sherwin, Media Correspondent
We've made some changes
to The Sunday Times

Read the Times Online posting here
ITV provoked a storm of controversy by declaring that it would broadcast the last breath of a dying Alzheimer’s victim – but the company was forced to admit yesterday that Malcolm Pointon had passed away days after the cameras had left his bedside.
The new furore over television “fakery” came about after Mr Pointon’s brother Graham posted a message on Times Online, disclosing that ITV had misrepresented the final scenes.
The incident came to light days after Michael Grade, ITV Executive Chairman, promised “zero tolerance” over any cases of misleading viewers.
However, in an interview promoting the programme, Barbara Pointon, his wife, had said: “I’m sure I will be pilloried for allowing his death to be shown, but it had to be done.”
In article about the programme she wrote: “The death scene, which . . . was filmed without being intrusive, serves a purpose and makes the important point that in dementia we confront a killer disease.”
Malcolm and Barbara: Love’s Farewell, due to be shown on ITV1 next Wednesday, is a poignant film that depicts the final, painful moments of Mr Pointon, 66, who had Alzheimer’s diagnosed when he was 51. It was shot by Paul Watson, an acclaimed documentary-maker.
Publicity material released for the show, said: “The film ends when Barbara calls Paul to ask him to come as Malcolm is about to die.”
At the moment of “death”, his wife of 43 years strokes his head and tells him: “You can let go. Death isn’t the end, because love goes on.” The film freezes on Mr Pointon’s face, giving the impression that he has died.
Those “last moments” prompted a week of debate. Graham Pointon’s post on Times Online came in response to an article headlined: “A man’s death is not a spectacle for TV”.
“In the new film,” he wrote, “we see my brother, Malcolm Pointon, dying. We do not see him die – filming finished three days before Malcolm stopped breathing, so the argument about the ethics of showing this on television, while important, does not apply to this case.”
Simon Shaps, ITV’s Director of Television, was informed of the Times Online posting. He issued a statement within hours confirming Mr Pointon’s version of events.
He said: “The film-maker responsible, Paul Watson, has now confirmed that the film does not portray the moment of Malcolm’s passing, which was in fact some days later. This will be made clear at the end of the film and should have been made clear earlier.”
Mr Pointon said that he was pleased with the response, and that the film did not need sensationalising.
“Most viewers would assume that you see Malcolm die. I am a linguist and there is an important distinction between a person dying and the moment when a person actually dies.”
Mr Watson said in publicity material that Mrs Pointon had asked him to film “to the bitter end”. He said of his work: “[Editing] is where you play god, and if you don’t play god truthfully, there’s no point. You might as well write a drama.”
The omission places ITV under renewed pressure as it awaits the results of a Deloitte investigation into irregularities in the operation of television phone-in votes on its channels.
A second GMTV executive resigned yesterday over the irregularities. Kate Fleming, controller of enterprises, was in charge of competitions.
Enjoy screenings of all the classic films you love, plus take advantage of two-for-one tickets
We explore leisure activities that are safe and suitable for all of the family
Times Online's new TV show helps you make the right decisions for your pet
See the best entries in this year's competition
Your brain is capable of more than you might think...
An interactive preview of the brand new For Your Eyes Only exhibition
The latest travel news plus the best hotels and gadgets for business travellers

Love Sudoku? Play our brand new interactive game: with added functionality and daily prizes

Are you irritable when you return from work? Drained of emotion? You could be suffering from boreout
Prepare for some shock and awe, petrol lovers. Despite the greens trying to wipe it out, the car is about to offer us the most exciting year ever
We've trawled the brochures and websites to find this summer’s best holidays for every taste and budget

Times Exclusive Tickets £25

2002/02
£59,995
The Midlands
2008/08
£169,950
Scotland
2007/57
£35,000
South East England
Great car insurance deals online
Circa £82,000 per annum
Birmingham Women's Hospital
Birmingham
To £28k
Barclaycard
Various (outside London)
£
Up to £66,000 per annum
Hertfordshire County Council
South East
To £38k
Barclaycard
Northampton/Liverpool
2 Bathrooms, Balcony and Garden
Beautiful Gardens w/ stunning Thames Views
Apts From £249,950
Mortgages, bank acc & money transfers to help you buy abroad
Explore mystical Jordan
From £1030 for 7nts 4*
to USA's Most Cosmopolitan City; San Francisco!
£POA
Book Now for Winter 08/09 and Get 10% off!
Great travel insurance deals online
Contact our advertising team for advertising and sponsorship in Times Online, The Times and The Sunday Times. Search globrix.com to buy or rent UK property.
© Copyright 2008 Times Newspapers Ltd.
This service is provided on Times Newspapers' standard Terms and Conditions. Please read our Privacy Policy.To inquire about a licence to reproduce material from Times Online, The Times or The Sunday Times, click here.This website is published by a member of the News International Group. News International Limited, 1 Virginia St, London E98 1XY, is the holding company for the News International group and is registered in England No 81701. VAT number GB 243 8054 69.
The showing of Mr Pointon's alleged death or his actual death serves no useful purpose to anyone except perhaps those with no moral code,but with financial interests.
The honesty of some television will, of course, manifest itself again when Jonathan Edwards presents the Christmas Service which was filmed last Easter - what a saving.
Rodney Barker, Gainsborough, England
With all respect to Mr Graham Pointon, linguistic precision is not the issue. The natural death of older people at the end of a long life, and especially with dementia, is a process and not an event. The process is the issue here - what it does to the individual, to the family, to the loved ones. In such a death there is little difference between only just alive and only just dead, and we should not be sidetracked from the main lesson by what is really a secondary issue. We avoid thinking about this process, instead of embracing as we should both the beauty and the trauma of it, the humanity of the highs and the lows. The journey that Mr & Mrs Pointon take is a story that we should study, and not feel intrusive: as one correspondent says, it is the one thing that we have in common, and of course Mrs Pointon has invited us to share this time with her. Andrew Makin, Director of Nursing, Registered Nursing Home Associatio
Andrew Makin, Silsden, West Yorkshire
I expect we shall get to see this documentary at some time in the future but for now I would like to say I think it is tremendously courageous of Mrs Pointon and for that matter Mr Pointon to allow his struggle with Alzheimers to be shown. The fact that the death came after filming ceased is irrespective of the insight shown into living and dealing with Alzheimers. My mother in law is suffering early onset Alzheimers and it is a frightening and lonely illness for her. As onlookers we sometimes feel totally helpless in understanding ways to help her but are still learning. All of our family dread what is going to "go" next. Anyone wanting to gain recognition for this terrible illness either by highlighting lack of care in society or lack of information in families gets my blessing and my thanks. To Elise who mentioned "gladiatorial system" hardly "innocent and honest" most gladiators were slaves!!!
JJ, Helensville, Auckland, New Zealand
I cannot believe people are so insensitive to Mrs Pointon, she obviously loved her husband more than life itself to continue to care and love him through such a dreadful disease. She should be admired for trying to bring to people's attention this disease and showing how it can happen to anyone and everyone. I am full of admiration for her and hope that she manages to continue her life without the husband she so obviously loved.
S Flint, Bray, UK
What's all the outrage about showing death? It's about the only thing that is common to everyone on this planet. Why does showing someone close to death imply a lack of respect?
P Howland, Wassenaar, Netherlands
The article in the Times today about the TV row over 'faked' Alzheimers death. As a full time carer for an Alzheimers patient (husband) I found the article deeply depressing. This is a very cruel disease particularly for the carer and it is very lonely. I very much hope that this will not tip other carers into deep dispair. Please think very carefully before publishing this kind of material.
Susan Stinson, Egham,
Silly people. All they needed to have done was put up a caption after the 'final' shot saying the Mr Pointon died three days after this scene was filmed. That would have been honest and not taken anything away from it poignancy.
Tonywjones44, Grantham, Lincs
Barbara has my deepest sympathy and admiration. I knew both her and Malcolm many years ago at University and am appalled to find out through television about this tragedy in their lives. I am also appalled at the savage attacks that at this time particularly are being made on Barbara and the obviously exceptional film maker who worked for eleven years on this project.My heart goes out to the family and I hope that eventually they will see a positive outcome from this unwarranted debacle. Of course the state should be responsible for the care of people with such sad degenerative terminal illnesses. 'Out of evil comes good' - perhaps this suffering of trial by TV had to be necessary to achieve the goals that Barbara has been working for all these years.
Jennifer Gray, Coutures, France
Vote with your feet, switch this fly on the wall rubbish off
J Smith, St Helens, UK
A no win situation. If they showed the actual death then this is morally wrong for TV and if they did not but people assumed they did then that is misleading. Please get a life, the program will show what the family go through with this terrible illness which is mostly hidden from us and that is a very good thing.
Joseph Kellie, Edinburgh, Scotland
Mrs Pointon has lost her husband, to say that she wants her 5 minutes of fame is disgraceful. Alzheimers is a terrible disease that robs people of their loved ones long before they physically die, any highlight of this can only help towards finding a cure for the disease.
Kate, Pai, Thailand
Having seen an increasing dumbing down of television progs and an increasing disregard for honesty and truth in programming, this furore is just another example of the dumbing down of the media who will pursue anyone and anything in order to make a story. The programme makers have I believe made an insightful programme into the effects of alzheimers on the individual and family.... it matters nothing that he lived a few more hours or days, his death was not faked.... HE DIED! maybe not that minute but then...There is much rthat is rotten, banal and dishonest in televiasion programming today... this is not it...is there no-one able to make a sensible assessment.....
Sally Meredith, Axbridge,
In answer to Elise's questions, I am the "sick" kind of person that will watch this kind of film. The "Good" in this kind of film will hopefully educate people about the suffering and dreadfulness of such an illness as Alzheimers. Yes, we can all pretend that Alzheimers does not exist but for those people unfortunate enough to live with family or friends suffering from it, we can all hopefully learn a little more about the illness. So sorry for Elise that she does not want to be depressed by the illness, lets hope she will never have to witness friends or family suffering! Unfortunately, Alzheimers DOES affect many people whether they like it or not.
Karen Cook, Bury, UK
The showing of Mr Pointon's alleged death or his actual death serves no useful purpose to anyone except perhaps those with no moral code,but with financial interests.
The honesty of some television will, of course, manifest itself again when Jonathan Edwards presents the Christmas Service which was filmed last Easter - what a saving.
Rodney Barker, Gainsborough, England
I have not seen this documentary, but my wife and I looked after her father until he passed away, in fact I was holding him as he went. He too had Altzheimer's,and there must surely be people out there who could benefit from seeing this film, to simply edit the film to give the impression of death is far less ghoulish than keeping a camera set up for days or even weeks just waiting for the final act. I think it was very brave of the family to have allowed this documentary to be made, it is a terrible thing to go through for anyone and I feel sure that some will at least feel that they are not alone when they find themselves in a similar situation.
Death is part of life, it has to be faced eventually by us all,and I believe that 'Life' is a grand illusion, the ultimate virtual reality, from which we all return 'Home'. Personal experience has demonstrated this simple fact to me many times.
CLIVE BURGHARD Lancing West Sussex, Lancing, ENGLAND
My father died due to Alzheimer's 10 years ago, and he was treated with the utmost respect by all of the NHS he came into contact with, simply because he had, (as did Mr Pointon) a loving caring family who insisted that it be the case.
Unfortunately it is not true for all sufferers and I hope that this programme highlights this.
As for the pretence of "filming a deathâ Please!, M Jeffs & Mr Shalor, you may (as do we all) wish Alzheimerâs didnât exist, but people need to be shocked into realising the pain this illness causes, and if this pretence attracts just one more viewer - then it is worth it!
Besides...death is the only thing that is guaranteed when you are born, what you do in between is what really important, we should all attempt to live life as the Pointon's did, lovingly and with respect!
My deepest condolences go to Mrs. Pointon.
Gilly, Huntingdon,
I would like to offer my support to Paul Watson. Well done, for maintaining his dignity, expressing himself so clearly and showing such sensitivity about his subject.He was treated disgracefully by Jeremy Vine on Radio 2 today.
anita hutchinson, Sheffield, England
I have no problem with showing Mr Pointon's death if appropriate to the nature of the documentary.
What I do have aproblem with is ITV gaining huge amounts of publicity over the last couple of weeks under what are basically fasle pretences.
At any time since this story came to prominence, someone from ITV or the production company could have tepped up and siad simply " Actually what is shown is his final passing into unconsciousness, he doesn't actually die on camera." But that wouldn't have got som much interest or so many viewers.
That duplicity is what is driving cynicism about TV companies at present.
Duncan, Knebworth,
This is the kind of documentary "or reallity TV" that I'm glad to see on television. I agree that TV can aid to educate and prepare people for such health problems and family issues
Mrs Yenny Clarke, Bristol, UK
What kind of sick people watches this?Or films this type of thing, for that matter? What good is there? Not enough depressive /depressed people around maybe??
"Just in case you were feeling happy today despite the news being bad as always, here is a documentary, about a real man dying and losing dignity , presented for your entertainment ; if you were feeling sad, this will confirm your opinion that we live in an unfair world"....
Bring back the gladiators,then, at least the system was honest. Not preying on innocent, helpless, people.
Please.
Elise Darchis, Oxford,
How can you condemn a woman you don't know as a heartless fame seeker untill you have seen the documentary? By all means question the morals of the programme itself, but these personal attacks are unfair and, I would suggest, will be proved unjustified.
C. Gorman, Glasgow,
I remember when there was a thing called respect, values and privacy.
All of which does not appear to have been shown
to a gentleman, who through no fault of his own, had Alzheimer's.
I dread to think how much lower a person can get than wanting to see and enjoy a person pass, what a sick society we live in and worse are those that make it available!!
Sadly that includes the family he has left.
NO IT DID NOT HAVE TO BE DONE
WENDY WEARN, ALICANTE, SPAIN
Sadly the earlier correspondents have no knowledge of Malcolm and Barbara before this news item. They've done a huge amount of campaigning on behalf of Alzheimer's sufferers over many years - this is just the finale. Whether you like to witness someone dying is another issue, but please do not lump them together with the YouTube society. Many sitting in their homes today are better off for their campaigns, but we still have a long way to go before the Government, DoH and NHS treat Alzheimer's sufferers fairly.
Sean, Dartford, UK
Everybody seems to be missing the point of why this documantary was made - to highlight the atrocious way dementia is handled in our society. Anybody who has been affected by the suffering people with Alzheimerâs goes through and those who care for them will appreciate this had to be done
Gina Jackson, Uxbridge,
I'm assuming that neither Sean Shalor nor M Jeffs saw the original programme regarding the Pointons' battle with Alzheimer's, broadcast some eight or nine years ago.
Had they done so, they would be in little doubt over how much Mrs Pointon loved and cared for her husband, and the devestating effect this illness had on their lives.
It is perhaps easier to pretend that conditions such as Alzheimer's don't exist, rather than confront them.
Rather than condemn the Pointons, I think we should applaud them for giving us an insight into a painful subject that many prefer to ignore.
S MacMichael, Oxford,
Having seen Mrs. pointon interviewed on television I disagree entirely with M Jeffs. Mrs. Pointon is clearly no fame seeker and displayed nothing but love and devotion for her husband throughout the years of his decline. This obsession with fakery is hollow in itself as producers will no doubt all have their own tales to tell of it as a means to an end in order to get the message across. In short it has been happening for years and to get worked up about it now is rather shutting a stable door after a horse has bolted.
Ian Wheaton, southampton,
I think they got the POINT across very well. WHO in this WORLD would want to see a persons last private moments.
Zoe , lancaster, lancashire
If I relinquish my television set, will I get a refund on my licence?
I know this is ITV, however the BBC is just as bad!
Lee, Dorset,
This is exactly the same kind of "entertainment" as the organised attacks on innocent people which are filmed and then posted on YouTube.
In our greed-based society, there are many individuals and corporations who will do anything at all for money.
Mr Watson and Mrs Pointon are a gruesome pair, pandering to to perverse death obsessions.
Sean Shalor, Coventry UK, UK
Is there no end to how low people will stoop for 5 minutes of fame. ITV, Mrs Pointon and the drama writer Watson have established they have no respect for Mr Pointon and everything they have represented about his death is a hollow lie.
M Jeffs, Bucks, UK