Paul Hoggart
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Sue Bourne and her 83-year-old mother Ethel are sitting in Ethel’s bedroom in a care home in Ayr, discussing how she spends her time. The two women share the same gentle Scottish accent and crisp, precise diction. Sue lives in West London, and it has been a source of some guilt that she manages the 800-mile round-trip only about once a month.
“I talk to my dad a lot,” Ethel says wistfully, nodding towards a framed black-and-white portrait of a middle-aged man.
“He’s not your dad!” Sue exclaims incredulously. “That’s my dad. Your husband! Who you were married to for 50-odd years!”
“Oh, that’s why he’s so familiar!” says Ethel, and bursts out laughing.
There are many moments like this in Mum and Me, Bourne’s video diary of three years visiting her mother, who was found to have Alzheimer’s six years ago. It is certainly one of the most affecting documentaries I have seen for some time, often poignant, occasionally heart-wrenching, but mostly just sweet and very funny.
“Alzheimer’s does seem to be on the increase,” says Bourne. “I suppose it’s because people are living longer. I knew the film would strike a chord with people because everybody knows somebody. We’re all affected by it now.”
The disease has certainly been eating steadily into media schedules. Iris Murdoch’s illness was portrayed in Iris in 2001. Three years ago Richard Briers played a pensioner caring for a wife afflicted with Alzheimer’s in Dad. Frank Finlay had it in Life Begins.
Last year the furore over the supposed death scene in Paul Watson’s second documentary about Malcolm and Barbara Pointon, Love’s Farewell, drew distracting negative attention to a stunningly powerful film. This year the author Terry Pratchett has “come out” as a sufferer.
Alzheimer’s, or senile dementia, even features in another documentary this week. In Marilyn Gaunt’s Class of ‘62 (Mon, BBC Two, 9pm), which updates the lives of the same group of friends she has been filming at intervals since they all left school 46 years ago, several of the women’s lives have been severely affected because they have had to care for suffering mothers.
“It’s usually the women,” Bourne reflects. “The men tend to die first.” She originally filmed her visits to her mother as a record for herself and her teenage daughter, Holly, but the very bleakness of most of this other material spurred her to go public.
“Every documentary I’d seen about Alzheimer’s was just grim,” she tells me. “Paul Watson’s film was wonderful, but, by God, it just put the fear of God into you. I hadn’t seen a film that was hopeful. Me and my mum can still have a laugh together and have a relationship. I think she’s exceptional – we have fun!”
Even the saddest moments in Mum and Me are relieved by Ethel’s apparently inextinguishable sense of humour. On a rare occasion when Sue and Holly arrive at the home to find her dejected, she tells them tearfully that “I just realised that my daddy’s dead!” “He died 50 years ago!” says Sue, and, yet again, they both collapse in fits of laughter.
“Initially I thought the film would become the journey of how I fell in love with my mum,” says Bourne. “We had a difficult relationship. I got on with my dad, but I didn’t get on with my mum, but she’s become so sweet in her dotage! I have sort of fallen in love with her. She’s taught me and Holly that whatever happens you make the best of it.”
Now a student at Glasgow University, Holly is central to the film, both for her special bond with her grandmother (“I love you granny, but you’re nuts!”) and as the camera operator.
Despite an impressive portfolio as a producer and director, Bourne had never used a camcorder and some of the earlier footage is decidedly shaky as the two women learn a new craft.
“Mum has a very healthy appetite,” says Bourne. “And we always take her out to cafés and restaurants, but it can be tricky setting up the camera in the car. Sometimes we had to prop it up on a pile of incontinence pads.”
The film certainly goes further than most in showing the difficulties of looking after an incontinent. Bourne is also disarmingly honest about the strains of the situation for all concerned. Carers everywhere will recognise the guilt, exasperation and sheer weariness that occasionally afflict her.
She knows her mother will not be like this for ever and dreads the day she will have to make that long journey “to visit a vegetable. That sounds terribly unPC, doesn’t it?” Well, no actually. It does sound completely honest, though – like this humane and uplifting film.
Mum and Me, Tues, BBC One, 10.35pm (N. Ireland: Wed, 11.55pm)
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I just saw the repeat of this programme on Friday. For the people who in their comments say they admire the daughter, if this is "loving" I would hate to see a bad daughter! The treatment of the grandmother was appalling humourless, no often how often the daughter told us it was funny.
Rocio Scott, Glasgow, Scotland
I found this documentary so shocking that I complained to the BBC. Shame on the daughter and granddaughter for the way they treated Ethel and shame on the BBC for allowing it to be shown. As far as I am concerned it was a form of elder abuse.
Elizabeth Roberts, Dumbarton, Scotland
i watched the programme , i was disgusted with the daughters behavoiur to her mother. talking down to her making her feel as if she had nothing in life to live for. as she has dementia she was unaware or lacked the undestanding of what was being said to her. i felt that the daughter degraded her mum
Lynne George, Doncaster,
Fantastic and uplifting documentary. Sue's committment to her Mum is quite exceptional. Sue and Holly have made a wonderful and enlightning film but the absolute star has to be Ethel! She certainly brought a smile to my face and hope for those around us suffering from this awful disease.
Janet Cameron, Glasgow,
I was so moved by this programe. my own mother died in Aug last year and at times it was like watching her as Ethel reacted in the same way my mother did. i appreciated Sue's honesty showing a real mother and daughter relationship. warts and all thank you.
Anne Mair, sactness, shetland
No one can understand how stressful caring for someone is unless they have experienced it themselves. How refreshing to see such an candid, uninhibited portrayal of a disease that can bring out the best and worst in people. Sue should be congratulated on her honesty and Holly was simply wonderful.
Juanita Stein, Vegas,
Have people forgotten that Sue is only human? An only child, dealing with cancer herself, raising her daugher while managing a career AND caring for her mother! With all those factors considered, I'm not surprised there were moments when she cracked. I have great admiration for her and Holly.
Caroline, London,
i really found this programme touching - and if anything came of it i think it is the point that without having a laugh - Ethel, Sue and Holly would suffer - of course some people will not agree with sue's treatment of her mother - but i would rather have a laugh than sit pitying myself & my mum.
may, ayr, SCOTLAND
Was Ethel capable of giving consent to this?? If not then whatever the merits may be then this should not have been on TV.
Sue, London,
CERTAINLY some harsh bits, but under all the strain & pressure its not suprising. I dont think the relationship was bad/unhappy/agressive, it was just how the three of them are. Of course its different to how we may be.
I cried throughout as it reminded me of my grandma. To me it was BEAUTIFUL.
Francesca, Nottinghamshire, UK
Having watched the programme with increasing horror, I don't know which is more shocking and frightening - the fact that someone could treat their mother so badly/abusively - describing it as humour - or all the positive comments above, including from a 'carer' in a care home dealing with dementia.
Patricia, London,
I thought this documentary was sickening. Ethel clearly did not want to be filmed and put on a brave face for the sake of her daughter and granddaughter. Ethel would not have wanted to be filmed on the toilet, taking a bath and having to pretend everything was OK. This was abuse.
Jo, N. Wales
jo tomlinson, Denbigh, United Kingdom
I would like to congratulate Sue for her brilliant documentary
about her family. Every emotion came accross on camera but with the love and laughter between the three of them those bad moments were just blips of time that should be forgotten.
Can we see it again - please
cheyenne Webb, Bridport,
This is slushy alzheimers at it 's worst.....the daughter and grand daughter obviously had nothing else to do apart from "care"...my mum got very nasty with her alzheimers...i work and have 3 young kids but boy did i bust a gut to look after my mother who hated me obviously i had no time to film....
liz , ashtead, surrey
This was the most brilliant and moving documentary i have ever seen. Sue,Ethel and Holly deserve an award for this program.Although my mum is still healthy at 73, i have a teenage daughter with Downs syndrome who has challenging behaviour at times and we find a good sense of humour is essential.
Debbie, Liverpool, Merseyside
This was a profoundly moving. It is quite clear that the three women love each other very much. The film shows how exasperating circumstances can be but also how something positive can come from it. I think Sue and Holly have opened an important debate. Respect to all three.
Deborah, London, England
this film was not nice to watch,i thought that sue and her daughter laughed at ethel not with her,i think they should be ashamed of themself they had no respect for her,i know that i would never treat my mother like that nor would i let my kids speak or swear at there gran the way holly did.appallin
denise , aberden, scotland
I wasnt going to watch this ... im so glad i did !
It was an extremely thought provoking documentary , not to mention funny , moving , and at times cringeworthy ! Sues treatment of her Mother showed just how hard it is to care for someone who has Alzheimers!
doriens, Peterborough, England
I have to say, that I really felt for Ethel in the way that Sue treated her on a number of occaisions. She did explain that their relationship had never been good - but the way she dealt with her at times, was awful.
T Williams, Devon,
Like some other viewers, i laughed out loud, shed a tear, felt angered at Sue's comments, and had sympathy. As much as some people disagree with the way Sue acted, this is what made it such a truthful, brutally honest documentary. It shows that carers are only human, and will feel frustrations too.
Ashley, Kent,
My daughter & I looked fwd to Mum& Me.We are similar in age to Sue and Holly -our mother/gran has Alzheimers. We both felt Ethel was treated unkindly by those who should be protecting her- wld she have consented or wished to be filmed on the loo for TV & be told "you peed the floor".Very unkind&sad.
R. Walker, Edinburgh, UK
i think this documentory was discusting the way sue bourn humiliated her mother about her incontinence was really undigified perhaps one day holly might be makng fun of her mothers accidents. perhaps they wouldnt visit at all if it wasnt to make the documentory
carol, manchester,
What an incredibly moving documentary. My Mother died last year and Ethel reminded me of her so much.
I have to say how amazing I thought Sue was and a special mention for Holly who was wonderful with her Gran.
Alison, Berkshire
Alison Collier, Maidenhead,
thank you for sharing these moments with us. i was crying and laughing with you. Ethel, sue and holly are inspirational and were honest and upfront about the impact of this disease. i hope you are all still laughing through this hugely emotional journey.
colette quinlan, edinburgh,
Sue Bourne clearly loves her mother but caused her so much needless distress by her lack of empathy or insight into Alzheimer's. Watching her berate Mum for removing her incontinence pads was painful. Treating a dementia patient like this is as cruel and pointless as smacking a child for bed-wetting
Hannah, Newcastle,
A very funny and moving documentary. Sue explains in real life terms what is it like to care for someone with Alzheimers. Even though Ethel is missing lots of memory she has a wonderfull sence of humour and a infectious smile, Ethel's humour and sence of fun shows in her grandaughter, Holly.
neale simpkins, dursley, UK
i just watched this moving and very funny doc', and loved it,
i wasnt expecting to laugh and almost cry as much as i did, it was great to witness the love between the 3 woman it was very beautiful ,
a great film
Graham D, Wallasey,
This is one of the most intense emotional programs I have ever watched and I can only admire and respect you Sue and your daughter, Holly. I wish you much happiness in the time that you still have together.
Sean, London,
Watched this wonderful insight into the sad , funny , inspirational way the family dealt with Ethels Alzheimers . As someone who works caring for those with Alzheimers disease and also their carers I laughed and cried throughout the programme . Thank you Ethel , Sue and Holly
Allison, Ayr, Scotland
I work in early assessment of people with dementia, some aged just 50. I have 24 years` experience of people with end stage dementia. I found this documentary poignant. There were funny moments yes, and priceless memories of honesty that helped, and sometimes inevitably hurt, Sue, Ethel and Holly.
kate, angus, scotland
This was a disturbing documentary, my grandmother had this awful disease and not once did me or my close family, who cared for her 24/7, show a lack of respect and dignity like Sue Bourne shown in this documentary, making fun of her, speaking to her like this disease was her fault.
louise, Liverpool, Merseyside
Sue should not feel she HAS to drive down and see her mum she should want to!!! Were do Alzheimers sufferers stand if their own family cant even give hem the basis respect and dignity they are entitled to??? After watching this I felt physically sick after some of the comments made towards Ethel!!
louise, Liverpool, Merseyside
as a carer, i'm looking forward to seeing something about the subject that is "just sweet and very funny".
Kamalpreet, London,
i think this documentary is absolutely appalling. not in terms of programme-making but the horrendous way this woman treats her mother on film. we hear about abuse of all kinds these days on the news, but the way sue bourne taunts her mother throughout the piece horrified me completely.
rachael ellis, amersham,